These National Organizations are information and advocacy resources for families and professionals. Many of these organizations provide a variety of services, others focus on more specific areas of concern. It is best to contact each organization directly for a full description of services.
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Assessible Playgrounds |
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| Boundless Playgrounds, Inc. | 1-877-268-6353 | http://www.boundlessplaygrounds.org |
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Adoption |
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| A Kids Exchange | 1-914-428-1236 | |
| AASK: Adopt a Special Kid | 1-888-680-7349 | http://www.adoptaspecialkid.org |
| Adoptive Families | 1-800-372-3300 | http://www.AdoptiveFamiliesMagazine.com |
| Jewish Children's Adoption Network | 1-303-573-8113 | http://www.users.qwest.net/~jcan |
| National Adoption Center | 1-800-862-3678 | http://www.adopt.org |
| Spaulding for Children | 1-248-443-7080 | http://www.spaulding.org |
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Architectural Accessibility |
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| Center for Universal Design | 1-800-647-6777 | http://www.design.ncsu.edu/cud |
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Arts |
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| National Arts and Disability Center | 1-310-794-1141 | http://nadc.ucla.edu |
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Assistive Technology |
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| Center For Best Practices in Early Childhood Education | 1-309-298-1634 | http://www.wiu.edu/users/mimacp/wiu |
| New Hampshire Assistive Technology Center | 1-603-528-3060 | |
| Lekotek's CompuPlay Programs | 1-800-366-7529 | http://www.lekotec.org |
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Bereavement Support |
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| Center for Loss in Multiple Birth (CLIMB), Inc. | 1-907-222-5321 | http://www.climb-support.org |
| The Compassionate Friends, Inc. | 1-877-969-0010 | http://www.compassionatefriends.org |
| Pen-Parents | 1-702-826-7332 | http://www.pages.prodigy.com/nv/fgck08a/penparents.html |
| Pregnancy and Infant Loss Center | 1-952-473-9372 | http://www.pilc.org |
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Breastfeeding |
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| La Leche League International | 1-800-525-3243 | http://www.lalecheleague.org |
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Child Care |
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| Child Care Plus+ The Center on Inclusion Early Childhood | 1-800-235-4122 | http://www.ccplus.org |
| The Canadian Special Link National Center for Child Care Inclusion | 1-800-840-5465 | http://www.speciallinkcanada.org |
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Developmental Disabilities |
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| AAC-RERC on Communication Enhancement | 1-919-681-9983 | http://www.aac-rerc.com |
| Developmental Delay Registry | 1-301-652-2263 | http://www.devdelay.org |
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Early Intervention |
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| Pathways Awareness Foundation | 1-800-955-2445 | http://www.pathways-awareness.org |
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Education |
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| National Coalition of Title | 1-202-291-8100 | |
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Employment |
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| Electronic Industries Foundation | 1-703-907-7400 | http://www.eiafoundation.org |
| Job Opportunities for the Blind | 1-410-659-9314 | http://www.nfb.org |
| Just One Break, Inc. | 1-212-785-7300 | http://www.justonebreak.com |
| Mainstream | 1-301-891-8777 | http://www.mainstreaminc.org |
| National Industries for the Severely Handicapped | 1-703-560-6800 | http://www.nish.org |
| Parents Alliance Employment Project | 1-630-495-4345 | |
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General |
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| Advocates Across America | 1-480-917-0955 | http://www.axa.org |
| The American Association of Retired Persons (AARP) | 1-800-424-3410 | http://www.aarp.org |
| Association of University Centers on Disabilities | 1-301-588-8252 | http://www.aucd.org |
| The Arc of the United States | 1-301-565-3842 | http://www.TheArc.org |
| Birth Defect Research for Children | 1-407-895-0802 | http://www.birthdefects.org |
| Children's Defense Fund | 1-800-233-1200 | http://www.childrensdefense.org |
| Council for Exceptional Children | 1-888-232-7733 | http://www.cec.sped.org |
| Easter Seals | 1-800-221-6827 | http://www.easterseal.org |
| Family Voices | 1-888-835-5669 | http://www.familyvoices.org |
| KDWB Variety Family Center | 1-612-626-3087 | http://www.peds.umn.edu/peds-adol/ |
| March of Dimes Birth Defects Foundation | 1-888-663-4637 | http://www.modimes.org |
| National Family Caregivers Association | 1-800-896-3650 | http://www.nfcacares.org |
| National Father's Network of Washington State | 1-425-747-4004 | http://www.fathersnetwork.org |
| National Vaccine Network | 1-703-938-0342 | http://www.909shot.com |
| NICHCY (Nat. Inf. Ctr. for Children & Youth with Disabilities | 1-800-695-0285 | http://www.nichcy.org |
| NPA: National Perinatal Association | 1-888-971-3295 | http://www.nationalperinatal.org |
| NPND: National Parent Network on Disabilities | 1-202-463-2299 | http://www.npnd.org |
| RESNA | 1-703-524-6686 | http://www.resna.org |
| The Roeher Institute | 1-416-661-9611 | |
| SNAP: Special Needs Advocate for Parents | 1-888-310-9889 | http://www.snapinfo.org |
| STOMP: Specialized Training of Military Parents | 1-800-572-7368 | http://www.washingtonpave.org |
| The Univ. of Montana Rural Institute: A Center for
Excellence in Developmental Disabilties, Research, Education and Service |
1-800-732-0323 | http://www.ruralinstitute,.umt.edu |
| World Institute on Disability | 1-510-763-4100 | http://www.wid.org |
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Genetics |
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| BridgeMar Research Foundation | 1-708-672-7599 | http://www.bridgemar.org |
| Genetic Alliance | 1-800-336-4363 | http://www.geneticalliance.org |
| Hereditary Disease Foundation | 1-310-5759656 | http://www.hdfoundation.org |
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Healthcare |
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| National Health Council | 1-202-785-5923 | http://www.nationalhealthcouncil.org |
| St. Mary's Healthcare System for Children | 1-718-281-8800 | http://www.stmaryskids.org |
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Hospitality Housing/Hospice |
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| Children's Hospice International | 1-800-242-4453 | http://www.chionline.org |
| Hospitality Program (Boston Area) | 1-617-482-4338 | http://www.hosp.org |
| National Association of Hospital Hospitality Houses | 1-800-542-9730 | http://nahhh.org |
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Independent Living |
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| Disabled and Alone/Life Services for the Handicapped, Inc. | 1-800-995-0066 | http://www.disabledandalone.org |
| Independent Living Research Utilization Program | 1-713-520-0232 | http://www.ilru.org |
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Information & Referrals |
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| Brave Kids | 1-415-561-2393 | http://www.bravekids.org |
| National Christian Resource Center | 1-800-369-4636 | |
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Legal Assistance |
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| DREDF: Disability Rights Education and Defense Fund | 1-800-466-4232 | http://www.dredf.org |
| National Association of Protection and Advocacy Systems | 1-202-408-9514 | http://www.protectionandadvocacy.com |
| Pike Institute on Law and Disability | 1-617-353-2904 | http://www.bu.edu/law/pice |
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Medical Travel/Transportation |
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| National Patient Travel Center | 1-800-296-1217 | http://www.PatientTravel.org |
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Prematurity |
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| The Alexis Foundation for Premature Infants & Children | 1-877-253-9470 | http://www.thealexisfoundation.org |
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Rare Disorders |
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| Canadian Organization for Rare Disorders | 1-877-302-7273 | http://www.cord.ca |
| MUMS: National Parent to Parent Network | 1-877-336-5333 | http://www.netnet.net/mums/ |
| NORD: National Organization for Rare Disorders | 1-203-746-6518 | http://www.raredisorders.org |
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Rehabilitation |
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| Easter Seals/March of Dimes National Council | 1-416-932-8382 | http://www.esmodnc.org |
| Easter Seals | 1-800-221-6827 | http://www.easterseal.org |
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Respite Care |
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| National Respite Locator Service | 1-800-773-5433 | http://www.chtop.com'locator.htm |
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Self-Help |
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| American Self-Help Group Clearinghouse | 1-973-326-6789 | http://www.selfhelpgroups.org |
| National Self-Help Clearinghouse | 1-212-817-1822 | http://www.selfhelpweb.org |
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Sexuality |
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| Sexuality Information and Education Council of the U.S. | 1-212-819-9770 | http://www.siecus.org |
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Sibling Support |
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| Sibling Support Project | 1-206-527-5712 | http://www.chmc.org/departmt/sibsupp |
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Suicide Prevention |
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| American Foundation for Suicide Prevention | 1-212-363-3500 | http://www.afsp.org |
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Support |
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| Friends' Health Connection | 1-800-483-7436 | http://www.friendshealthconnection.org |
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Toy Lending & Adaptations |
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| The National Lekotek Center | 1-800-366-7529 | http://www.lekotek.org |
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Training Programs |
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| Project DOCC: Delivery of Chronic Care | 1-877-773-8747 | http://www.ProjectDOCC.rg |
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Travel |
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| Mobility International USA | 1-541-343-1284 | http://www.miusa.org |
| SATH: The Society for the Advancement of Travel for the
Handicapped & Elderly |
1-212-447-0027 | http://www.sath.org |
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Wish Organizations |
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| Children's Hopes and Dreams Wish Fulfillment Foundation | 1-973-361-7366 | http://www.childrenswishes.org |
| Children's Wish Foundation International | 1-800-323-9474 | http://www.childrenswish.org |
| Grant-A-Wish/The Children's Promise Foundation | 1-800-933-5470 | http://www.grant-a-wish.org |
| Make-A-Wish Foundation of America | 1-800-722-9474 | http://www.wish.org |
| Sunshine Foundation | 1-800-767-1976 | |
| The Children's Wish Foundation of Canada | 1-800-700-4437 | http://childrenswish.ca |
| The Dream Factory | 1-800-456-7556 | http://www.dreamfactoryinc.org |
